The European Dysmelia Reference and Information Centre
Welcome to the EDRIC website - the central source of information for all people affected by or concerned with Congenital Limb Reduction - Dysmelia.
Resource Centre
The Resource Centre provides free access to sources of information and advice about independent living, ergonomics, quality of life, wellbeing, health and social care issues, and an archive of information about dysmelia and related topics from previously published and some unpublished material.
Some content is aimed at a general readership, and there is specialist material intended for health and social care professionals, and academic researchers.
Registry of Dysmelia
We are working with partner organisations to develop a Registry of Birth Defects attributed to Dysmelia. Epidemiological, demographic and geographic data, captured at source locally, or extracted from EUROCAT and other existing sources in several EU Member States, will be collected, analysed, anonymised and made available to clinicians, researchers and health statisticians in a structured form via analysis tables and reports, accessible from a secure web portal.
We expect to start the development work in April 2011.
The EDRIC Social Network
We are working with partner organisations to develop an online community for dysmelia. Here you will be able to exchange information, discuss issues and contribute to the community; access sources of information about independent living, ergonomic, health and social care issues; refer to directories of health and social care experts. There will be a facility for health professionals to conduct secure discussions with colleagues and to consult about specific cases.
We expect to launch the community in early 2012.